Tag: internet access

America’s broadband divide: Are we ready for digital health records?

President George W. Bush set a bold goal for our medical system: create a digital medical record for every American by 2014. The Obama administration raised the stakes this year by pressing for billions of dollars in stimulus funding to jumpstart adoption. Under the plan, doctors will be able to apply for $44,000 in extra Medicare payments if they purchase digital systems and make “meaningful use” of them. Hospitals can receive millions of dollars from the same program.

This nationwide system of computerized medical records will cost nearly $100 billion, but there’s broad agreement on the value: if 90% of hospitals go digital, it will save $77 billion a year in healthcare costs as well as create new jobs and prevent deadly medical errors.

Sounds like an ideal system. The problem: Almost one third of Americans may not be able to access their own records.

Last month, the U.S. Department of Commerce released their latest benchmark data on internet use.

The internet may be important to American life, but its use is far from universal.

Over 30 percent of households do not use the Internet at home, and 30 percent of all persons (not households) don’t use the internet anywhere. The top two reasons? They can’t afford it and don’t care about it.

People who don’t use the internet are more likely to be low income, seniors, minorities, the less-educated, and rural Americans.

To prevent widening the gap in access to the best-quality healthcare, the first step may not be digital medical records, but universal internet access. More access means greater transparency in record keeping, more ability to add to our own medical files and an increased number of digital encounters (email, video chat, etc.) to supplement office visits.

A debate has recently started on just how we’ll get there.

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ePatients who could most benefit from online support don’t have access

In  a report issued yesterday, the Pew Internet & American Life project uncovered some more bad news for people living with chronic disease:

Not only do they often have complicated health issues, not easily solved by the addition of even the best, most reliable, medical advice. They are also disproportionately offline – lacking access to both the knowledge and support so many of us turn to the internet for.

The numbers are jarring. 81% of people with no chronic conditions are online vs. only 52% of people with two or more conditions.

The issue of lack of equitable access is made even more complex by changes in physician behavior. Doctors increasingly rely on the internet to supplement their patients’ knowledge and understanding. Last year, Manhattan Research reported that 58% of physicians recommend specific websites to their patients (not suprisingly, WebMD is at the top of their list).

There is some good news. Once people with chronic diseases do go online they are more likely to blog or participate in online discussions about health problems. They are gathering on big patient networking sites like PatientsLikeMe, HealthCentral, Inspire, CureTogether and Alliance Health Networks, and on small sites started by patients on networks like Ning and Wetpaint. They’re more active contributors in that health space – both about the personal issues associated with their condition and specific health problems.

People with chronic diseases are often more inspired than others by the information they found. The report includes verbatims like these:  one person wrote, “[An] online support group helped me learn about the disease and provided comfort in knowing that my symptoms were not ‘just in my head,’ and helped me take steps to adjust to living with a chronic condition.” Another shared, “I live in a small town and it is helpful to be able to use the internet to find others that have the same condition as I do.”

Getting patients access to this kind of support can be life changing. The opportunity to do that can come from both sides of the equatation:

  • More access: Through, for example, internet devices in waiting rooms
  • More interest: A clearer picture for offline patients about what resources and tools they’ll find (specific to their disease state) online
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